We need to keep fighting and pressing onward, as there is still tremendous unmet need. I’m one of the 66 percent of epilepsy patients who found an effective treatment, but there are 34 percent for whom this has not been a reality, including Daniel.

My second source of hope has come from Daniel himself. Even though his seizures are not controlled, his treatments have helped tremendously. Today, I see him happy, living a life of quality, and a life in which he is well taken care of. To me, that provides huge satisfaction as a patient, but much more so as a parent.

To patients like Daniel, I encourage you to engage with life, starting with an acceptance of who you are. I often meet people with epilepsy who are afraid or ashamed to admit they are affected, but the first step to a fulfilling life is to love who you are. We are not epileptics – we are people who live with epilepsy. The best thing you can do is acknowledge this, understand the impact it has on your life, and then begin living your life to the fullest.