Caregivers

Equally important to the fight for innovation are parents, caregivers of all types and industry advocates who give voice to the needs of others. Read the stories of those making change happen and bringing visibility to issues that might have been left unseen.

A Mom Fighting for her Son

My son Loic had the kind of life every parent hopes for – school, playing with his sister, and enjoying life like other children. He was diagnosed with PKAN at just 2 ½ years old.

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