
A Mom Fighting for her Son
My son Loic had the kind of life every parent hopes for – school, playing with his sister, and enjoying life like other children. He was diagnosed with PKAN at just 2 ½ years old.
Equally important to the fight for innovation are parents, caregivers of all types and industry advocates who give voice to the needs of others. Read the stories of those making change happen and bringing visibility to issues that might have been left unseen.

My son Loic had the kind of life every parent hopes for – school, playing with his sister, and enjoying life like other children. He was diagnosed with PKAN at just 2 ½ years old.

Cristina, a resident of Arizona, is the proud mom of two sons, Aaron and Curtis.

In 2021, my husband, Larry and I found ourselves sitting at a medical center waiting for his test results…

Throughout my career as a respiratory therapist, I have worked with patients dealing with chronic health conditions.

Every parent’s greatest fear is the loss of a child. And Benjie Fido, father of son Antonio, who was born 25-weeks premature…

Being a caregiver to my husband…
Having watched many of my family members suffer from Alzheimer’s, I am deeply…

Alisa May serves as a caregiver to her son Justin, who suffers from…

Emily is a mom from Montana who feels strongly about making her voice heard: “I decided to be part of Voters for Cures…